Registries

Complete list of Computerized Diseases Registries which assist in Chronic Disease Care and Registries exist on all consumer health diseases and conditions information - nutrition, cancer, diabetes, mental health, allergies, depression etc
Chromosome 18 Registry Research Society
http://www.chromosome18.org
PageRank: 0/10
(Clicks: 0; Listing added: Mar 28, 2011) Listing Details Report Broken  Listing
NIHsupported Registry promoting research into diagnosis and treatment of ichthyoses and related disorders Serum testing for XLinked ichthyosis biopsy slide analysis and DNA testing for many types of ichthyosis available for enrolled individuals
http://depts.washington.edu/ichreg/ichthyosis.registry
PageRank: 0/10
(Clicks: 0; Listing added: Mar 28, 2011) Listing Details Report Broken  Listing
Finding the genes that cause lupus akaSLE or systemic lupus erythematosus these Oklahomabased studies work with families with 2 or more lupus patients utilizing the genetic link between relatives to locate responsible genes
http://lupus.omrf.org
PageRank: 0/10
(Clicks: 0; Listing added: Mar 28, 2011) Listing Details Report Broken  Listing
Gaucher Registry an ongoing observational database that tracks natural history and outcomes of patients with Gaucher disease
http://www.gaucherregistry.com
PageRank: 0/10
(Clicks: 0; Listing added: Mar 28, 2011) Listing Details Report Broken  Listing
ASA Closed Claims Project
http://depts.washington.edu/asaccp
PageRank: 0/10
(Clicks: 0; Listing added: Mar 28, 2011) Listing Details Report Broken  Listing
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